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A Journey of Compassion: The Unsung Heroes Battling Leprosy in Bongo

David Asamani-- Staff Nurse, Bongo Soe Health Center
Apexnewsgh

A battle is being fought, a struggle not only against disease, but against stigma, neglect, and despair. At the center of this fight is staff nurse David Asamani of the Bongo Soe Health Center, whose daily acts of compassion have transformed the lives of leprosy patients who have been forgotten by society. Apexnewsgh reports

David Asamani is not just a nurse. To those he cares for, he is a lifeline, a confidant, and sometimes even family. While many health workers draw the boundaries of their duties at the clinic doors, Asamani’s responsibilities stretch far beyond. For him, the well-being of his patients does not end with the administration of medicine; it is a holistic mission that takes him across dusty roads and into the humble homes of those suffering from leprosy.

The story of his devotion was brought to light during the documentary “Pains of the Forgotten: Leprosy, Stigma, and Resilience,” produced by Ngamegbulam Chidozie Stephen of ApexNewsGH. Asamani’s words echo the silent struggles of the people he serves: “Anytime I go to give them the medicine, I can see the suffering they are suffering,” he shares. The pain he describes is not just physical—but a deep emotional and social wound inflicted by poverty, isolation, and stigma.

Many of Asamani’s patients live in the shadows, their disabilities making even the most basic tasks, cooking, cleaning, and earning a living, almost insurmountable. “Some of them will tell you they don’t even have food to eat while taking the medicine. Most of them don’t have anyone to help with household chores or economic activities; they just struggle on their own despite their disabilities.”

One day, a new challenge arose. The district office called on leprosy patients to renew their health insurance and register for the government’s LEAP program. For most, this would mean a simple trip to town. But for these patients, left unsupported by family and shunned by their communities, it was an impossible journey. Asamani refused to let circumstances defeat them. “I had to use my motorbike to carry three of them to the district,” he recalls. The image is striking, a single nurse balancing duty and compassion, ferrying his patients toward a lifeline they could not reach alone.

But compassion alone cannot fill empty medicine cupboards. Asamani’s dedication is tested time and again by the persistent shortages of vital drugs for leprosy and other neglected tropical diseases (NTDs). “Sometimes when patients need the medicine most, it is not available. By the time it comes, the harm has already been caused,” he laments. His plea is simple but urgent: “We will be grateful if the medicines could be available at all times. That will be very helpful.”

Despite the government providing treatment for free, the reality on the ground is a different story. Attention is often focused elsewhere, and NTD patients find themselves at the bottom of the list. “Our concentration is on other diseases, neglecting these people. Meanwhile, these diseases cause a lot of economic challenges in our society. If we don’t take good care of them today, tomorrow you don’t know who might be affected,” Asamani warns, his voice carrying both frustration and hope.

To Asamani, the fight against leprosy is not just medical, it is humanitarian. Each home visit, each ride on his motorbike, each moment spent listening to a patient’s worries, is a step toward restoring dignity and hope. His story is a powerful reminder that treating disease means more than dispensing drugs—it means confronting the poverty, stigma, and neglect that allow such illnesses to flourish.

Yet, Asamani is not alone. The fight against leprosy in Bongo is bolstered by the work of the Development Research and Advocacy Center (DRAC), led by Executive Director Jonathan Adabre. DRAC’s approach is as holistic as Asamani’s devotion. With support from Anesved Fundación, DRAC raises awareness about the early signs of leprosy, elephantiasis, and yaws. “Many believe leprosy is genetic, but it takes up to 20 years to manifest. That misconception must end,” says Adabre. Their campaigns battle not only illness, but ignorance.

DRAC Executive Director Jonathan Adabre.

DRAC’s impact is tangible. The organization has drilled ten boreholes across affected communities, ensuring access to clean and safe water. They have set up water health committees that teach hygiene practices, crucial in the fight against NTDs. But perhaps most transformative is their focus on economic empowerment. DRAC organizes training sessions in basket weaving and soap-making, providing materials and connecting patients and caregivers to markets. “Buyers come to the community to purchase baskets, and we provide materials and training,” Adabre notes. For many, these initiatives offer more than an income; they restore a sense of worth, dignity, and belonging.

The story of Bongo’s leprosy patients is one of resilience, not just suffering. It is written in the determined footsteps of a nurse on his rounds, the laughter of women weaving baskets, and the hope that comes with every borehole drilled. It is a story that calls for more than sympathy; it demands action, understanding, and a commitment to never again let these lives be forgotten.

WATCH THE VIDEO DOCUMENTARY:

Source: Apexnewsgh.com/Ngamegbulam Chidozie Stephen

Ngamegbulam C. S

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